Duo – A Journey to Overcome Nephrotic Syndrome
Age: 7 years old
Duo's Story
Baby Duo, a 7-year-old Karen boy born in April 2017 from Myanmar, is courageously battling Nephrotic Syndrome — a kidney disease characterized by the leakage of large amounts of protein into the urine. His symptoms included puffy face, swollen legs, fatigue, and difficulty urinating.
Diagnosis & Condition
Nephrotic Syndrome — kidney disease characterized by massive proteinuria, causing edema (puffy face, swollen legs), fatigue, and difficulty urinating. Confirmed via kidney biopsy at Siriraj Hospital.
Treatment Plan
Immunosuppressant medication
Prolonged corticosteroid therapy
Strict salt-free nephrotic diet
Careful fluid intake monitoring
Regular nephrologist follow-ups
Kidney biopsy (November 2021)
Medical Journey
Early 2021: Parents noticed concerning symptoms and brought Duo to the Thailand border seeking medical help, arriving at Bamboo School Orphanage where Momo Cat facilitated his care.
February 2021: Rushed to Saiyok Hospital, then transferred to Pahol Hospital in Kanchanaburi, and eventually referred to Siriraj Hospital in Bangkok for specialist diagnosis and treatment planning.
November 2021: Underwent kidney biopsy; began immunosuppressant treatment with strict nephrotic diet requirements and frequent professional monitoring under Dr. Mowae's supervision.
February 2022: BWCCF visited Bamboo School; Duo showed significant progress with fluid accumulation resolved, living normally for his age. Future possibility of kidney transplant remains.
May 2022: Residing at Bamboo School; follows salt-free diet with supervised nutrition; fluid intake carefully monitored. Unable to return to Myanmar due to hospital proximity needs.
August 2022: Condition remained stable on prolonged corticosteroid medication. Parents attempted to retrieve him but couldn't return due to military conflict. Continues requiring nephrologist follow-ups.
September 2022: Due to congoing political conflict along the border between Myanmar and Thailand, Duo went home with his parents and never return. We hope that he and his family are still alive and doing well.
Progress Updates
Went home and never return
Due to ongoing political conflict along the border between Myanmar and Thailand, Duo went home with his parents and never returned. We hope that he and his family are still alive and doing well.
Condition Stable — Parents Unable to Return
Condition remained stable on prolonged corticosteroid medication. Parents attempted to retrieve him but couldn't return due to military conflict in Myanmar.
Stable on Treatment at Bamboo School
Duo continues residing at Bamboo School, following a strict salt-free diet with supervised nutrition and carefully monitored fluid intake.
Significant Progress — Fluid Accumulation Resolved
BWCCF visited Bamboo School and found Duo showing significant progress. Fluid accumulation had resolved and he was living normally for his age.
Kidney Biopsy — Immunosuppressant Treatment Begins
Duo underwent a kidney biopsy at Siriraj Hospital, confirming Nephrotic Syndrome. He began immunosuppressant treatment with strict nephrotic diet requirements.
Referred to Siriraj Hospital Bangkok
Duo was rushed to Saiyok Hospital, then transferred to Pahol Hospital in Kanchanaburi, and eventually referred to Siriraj Hospital in Bangkok for specialist diagnosis.
Parents Seek Medical Help in Thailand
Duo's parents noticed concerning symptoms including puffy face, swollen legs, fatigue, and difficulty urinating. They brought him to the Thailand border seeking medical help, arriving at Bamboo School Orphanage.
The Difference You Made
Duo has shown remarkable progress. He lives at the Bamboo School where his diet is carefully managed and he receives ongoing medical monitoring. His journey is a testament to the power of hope and compassion.
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